I am normally a lurker on the epilepsy boards, but i had to pass along some info on nitarita34 surgeon problems. My 23 year old son had the implant in Aug of "03" It was done in N.J. by a nuro surg. that has his practice in N.Y.C and comes to N.J. once aweek to do work here. He implanted the VNS in my sons chest BETWEEN the chest muscles instead of on top of them. He has had no problems with it shifting around. I"m not sure if I can tell you his name but I really think it vitally important to give his name, so maybe nitarita34's ns can get in touch with this Dr., his name is Dr. Werner Doyle and he works out of NYU. His info can be found on the cyberonics web site in were to find a Dr. I hope this info gets to her before Thru. Hoping for the best for nitarita34. Monica

one more thing to add, i looked the NS up on that web site, he is not there, but I do have his Phone #, which is XXX-XXX-XXXX. Hope this helps.






(PLEASE do not post personal information such as phone numbers. If you need this number e-mail to poster for the information.
:Thanx:
Birdbomb)

Monica, THANK YOU SO MUCH!!!! That is one of the approaches that my Dr. spoke to me about today (yes he did call to check on me as promissed) I do feel relived that he is taking this as a problem (the third time) and trying to figure other alternatives/methods for the unit. It migrated again this morning to my shoulder and had to "pop" it back down. I know this sounds horrific, in some ways it is to me because it gives me the "hebbie geebies" and a lot of pain but until Thursday there is not much I can do. Unfortunately he only does surgery two days a week and Monday was already one of them. I PRAY this time is sucessful. I am taking it easy for today and tomorrow and trying to be still and am using the "tape method" now to at least hold it down. It was when I raised my arms in the shower to rinse my hair that it went to the shoulder. My employemnt is to their wits end with me, but I have no choice, it is not like I have the flu and can manage with some medicines and all. Depression is still the roughest right now and I am not wanting to deal with anyone except my kids, the doctors and on here. I get tired of getting asked at work why this isn't working and why it is taking me a month now to get this thing "right". I have found other employment now and after this is all over with I am cutting back to what I can handle physically and mentally. Jumping back on the band wagon to try and work full time has made a mess out of me let alone the stress and many many hours has increased my seizures (the ones that feel like I stuck my finger in a light socket and my body jerks*they go on for hours at a time I know my other neuro in the town I last lived in was leaning more toward MS-but this neuro says epilepsy) and the depression is at a max and anxiety disorder is messing with me too. I wish for a manic sometimes (I know better though). Actually what I wish for is peace. Again to all, thank you for listening, your support, your info, and I love to hear the great stories on here for I hope to be writing everyone in a few weeks that sucess is taking place for me too. God bless us all.
Anita