I personally do not have sezures.. but i have lived with people who have.. Oddly enough Both my ex Husband and my current husband have sezures different yet similar.

When i was with my first Husband i noticed small things he always did before sezures and changes in his physical apperance. For him he would rub his hand over his head and the "bags under his eyes would turn a little more green then normal". His doctor had recommended that he take 3 Dilantin pills directly after a sezure or when he felt like he was going to have one ( this was on top of his morning and night 3 pill dose... he never did get his blood level correct because he was drinking to much ). When i saw those signs i would tell him to get on the floor and prop his legs, which he said made him feel better sometimes.

Now he said his symptoms directly before a sezure were a headache and loss of peripheral vision. If he said that i knew he was about to go down and soon.

Joe still gets fussy with me because if i see him rub his forehead i ask if he is okay *lol* still its an automatic response on my part. For joe there really are no indicators, sometimes he will say he is feeling woosey, which is the best way he can discribe the feeling he has when he is feeling sezurish. That doesn't automatically mean he is going to have a sezure within minutes either. He could feel like that for up to 24 hours or more before having a sezure or not feel weird at all and have a sezure. He could have a headache before or after the sezure. Basically there are no rhyme nor reason with Joe's Sezures.

However the one thing i noticed with both was a define smell.. no im not talking blood smell from them biting their tounge or anything like that... although the smell i get is slightly coppery or metalic. It is a define smell that i just know as a sezure smell. When i come home i can tell once i get close to Joe that he has had a sezure. I believe the smell is what actually wakes me up at night so i can toss an arm over Joe so he doesn't go rolling off the bed. If i do not wash the bed sheets regularly or if he has had more sezures then normal they get over powering with the smell and i can't take it and have to wash them. Sometimes i can catch the faint smell of a sezure before he has one but not often when i am awake.

Anyone else who's loved one has sezures have you found indicators that have helped you know when its going to happen?

Good entry, SezLuv. I am curious to read what people say. I have never noticed anything like you mentioned but I am the epileptic. Guess I could call my ex.... nawwwwwwwww... not going there... :ROFLMAO:

I know I do have an aura before a grand mal and my entire family and co-workers know what it is so that they will know what is going to happen. Mine is a twitching of my right thumb which radiates through my hand and up my arm.

My doctors have always told me to take my night-time dosage of phenobarbital after a grand mal and just rest until I feel better. I have not had any grand mals in years as mine have been medically controlled. My VNS was implanted to try to control the absence complex seizures which have never been controlled by medication. To date the VNS has had no results for me, either positive or negative. Sometimes it takes time, so I am waiting.... patiently... yep, patiently... okay not so patiently... LOL

:im_033:

*lol* paciently Riiiiiight .... i think all of us want the results right away .. but are willing to wait for them because we have hope.


Interestingly enough some people ( joe included ) know before hand when they are going to have a sezure by a few seconds .. sometimes he will quickly sit down his coffee and get to his knees and even state " we got a problem" before going into a sezure, however the seizure activity gives him loss of memory of those events. He remembers standing there with his coffee and then being on the floor going Owwie as he puts it. We have specifically talked about this and went over things i have said to him during that time and he remembers nothing.

That is one thing that they were trying to go over at the hopsital trying to see what someone having a seizure can remember afterwards, to try to get a clearer imagine of where the seizures are coming from. It was sort of funny because i told the lady ( really not trying to be rude ) but that i could tell her what when and what he would respond to all she had to do was ask. They needed it for research though, but we were released from the hospital before we even got to watch the video. ( personally i wanted to watch the video because i wanted to see how they represented someone having a seizure.. my bad .. majorly curious i guess)

I have noticed the same thing with my wife. She was "thrilled" when I told her she had a certain "smell" about her prior to her seizures. :ROFLMAO:

Hehe ... Yeah Joe the first time i told him he thought i was coo coo for cocoa puffs.. its not a plesant smell either.. it clicks in my head as a foul smell definately catches the attention .. and i have NEVER smelled anything that smelled like it before.