If there are any Lawyers out there who would help us out it would be greatly appricated.
We want to stay on track here and not stumble, and the last thing that I or any one else wants to do is make any false accusations.

So if there are any Lawyers out there how about going to this site www.supremecourtus.gov/ and interpreting this ruling for us in plain layman terms so we know what are rights are (17 02/20/08 06-179 Riegel v. Medtronic, Inc. AS 552/2)

My intent is not to pass on any false information just the truth. I can only hope that my Lawyer had passed the truth to me.


Keith

Hi,
I was told I should call a lawyer in the state I had my implant. That was Mo., I live in NC now. I hope you get a reply from a lawyer, I could use some help also.

HAVE A GREAT NIGHT

Jennie

This attorney's no. came on tv a few days ago for the defibulator and when I talked to them they took my phone no. so if anything comes of the VNS they can contact me. You might try this attorney.

1-888-529-8585.

Ada

To All,

We need to present accurate accounts of our own personal or loved one’s (Laura, my daughter- deceased) experience regarding the VNS. This individual information needs to be catalogued together as ONE to show the impact the VNS has had on so many people and then should be presented to the media. Given the amount of people who have been adversely effected by the vagus nerve stimulator, the pubic will demand answers. There is strength in numbers; everyone should make a concerted effort to present our facts together as ONE.

Laura’s Mom

There is hope on the horizon. If the Medical Device Safety Act of 2008 passes, then we should all be in good shape.

http://www.citizen.org/pressroom/release.cfm?ID=2682

Hi Dennis,

I can't believe you put this up today...I spent about 2 hours yesterday researching all the work Public Citizen's has already done regarding Cyberonic's specifically. Maybe I'm really late on the draw here, but I haven't seen anyone bring up this organization since I joined the forum earlier this year.

Before I got to this thread, I posted a response to Dispatch asking her if she was familiar with PC....I mentioned that I was going to try to get out a general inquiry letter to them this week.

I was thrilled to see your post and the content of the 6-26-08 PC release. "Someone" is definitely looking out for us.

:wavetowel2:

THANKS Dennis! I hope this brings hope to many people! I am just amazed at the stuff you find!

Dispatch B)

I sent an email to my Congressman yesterday. This afternoon I will call his office and repeat my message.

I also will call Public Citizen's, Inc. to find out whether timing is right to contact my senators as they haven't yet introduced a bill in the Senate.

Seems this is a GREAT window in time to pursue the atrocious misconduct of Cyberonics and the horribly misguided legislation that surrounds medical devices and the head in the sand behavior of the FDA.

I know the letter writing (or email) is important; I've been told phone calls make an even greater impact. I am hoping that someone at Public Citizen's can "map out" a campaign that will allow each of us to do our part to make the greatest impact.

I will fill you in on whatever I find out!

Hi there.
I'm new here and I left a post last week regarding my distaste for this device. I've had my implant for almost 2 years now (for TRD) and I'm just as unhappy as I was before the implant. I too am seeking a lawyer (and have been for some time now for a class action suit), yet I've never met anyone personally with the device to discuss it. I think Cyberonics has been my main cause of dissatisfaction. I don't even know if there's anything wrong with my implant because Cyberonics can't seem to hook me up with a new doctor here (NYC) who knows about VNS. The doctor I'd been seeing for the past 2 years is new to this device as well. I was his guinea pig and only patient. Cyberonics told me he is the only doctor that they're training in NYC. Well, Cyberonics can't seem to get their act together. I called them last week to complain yet again that I wanted the device turned off and removed. Its 2 years later and they're telling me I should get a second opinion before having it turned off. They then made an appointment for me to see some other doctor here trained in VNS. They told me that there wasn't one each and every time I called them! I spent $50 today in cab fare trying to get to see this doctor, only to be told that there was a problem with scheduling. What is going on with Cyberonics??? I sit here typing with the magnet taped on still gasping for air! When I call them to complain, I get passed around to so many people and then I get someone's voicemail. I have a device in my body that is harming me and I would like to shut it off, yet the manufacturer keeps eluding me. If you're gonna give someone a Porsche (or rather, a device that was supposed to be of that stature for TRD), shouldn't you give the owner/operator a "detailed" manual as well???

Hi mlswings,

Welcome to the board! You are in a very good place to get info and share info.

Your comments match those of MANY who have posted. It would really helpful to you to read through topics and threads already posted. There are areas that discuss everything you've addressed as a concern.

You will see that a Supreme Court Decision has made it almost impossible to sue Cyberonics... Just this week though, a member posted information that the House of Representatives has just introduced a bill asking that the decision be reversed.

So...after you've poked around a bit...if you have additional questions...ask away. There are many in the same boat as you and this is THE BEST place to get support.

: party1 : Welcome to the party....in addition to info and support...you will find some really good laughs!

If you cannot get a pdoc to turn your VNS off, start calling neruologists and epileptologists in your area. There ought to be SOMEONE who can.

This is the same bullshit many others have experianced when they decide it's time to turn it off. My CYBX rep was livid and gave me nothing but grief. I made sure they understood, I was not leaving that office until the damn thing was turned off.

MY body, MY choice. It was not a friviolous decision either.

Then I fired my neuro.

These guys get real upset at turning the VNS off. It's like they only get paid if the unit is active and wages cut if not. Now that is an interesting thought! With over 1/2 of the implanted units already off, it would make for interesting paychecks and
incentive payments.

Thanks, Head Cheese.

I really think Cyberonics takes it personally when we'd like to have the device turned off. I don't know about you, but according to the research I've read, only 30% of TRD patients benefit from VNS. So, they should really learn to be professional about this instead of insisting that we keep it on. "It takes time to work, blah blah blah!" I'm so fed up. Believe it or not, I went to the neurosurgeon who implanted me and he couldn't even turn it off because his device wasn't working. Unbelievable. I'm totally with you on the "my body, my choice." I hope we can all benefit somehow from our experiences, yet I don't know if that's possible. It would be nice if we could benefit at the bequest of Cyberonics, though.......

:ROFLMAO:

I went to the web site. I couldn't find any updated information. Does anyone
have any more information. I am going to keep my implant after surgery 7/23/08,
because I REALLY WANT TO SUE CYBERONICS!

Any Lawyers out there that can help us????



http://www.citizen.org/pressroom/release.cfm?ID=2682

(thanks Dennis for the site)

Jennie