Late-onset periodic asystolia during vagus nerve stimulation.

:D

Intersting reading...wonder what Dennis thinks about these publications.

B)

[QUOTE=Birdbomb,Feb 22 2009, 11:43 AM] Late-onset periodic asystolia during vagus nerve stimulation.


" Only one patient with late-onset bradyarrythmia caused by VNS has been reported."


I wrote to the author and informed him that he didn't have his facts straight. This article really caught my eye because these spanish doctors were led to believe that their patient was only the second person ever to experience late-onset cardiac problems.

A Cyberonics rep told me that I was only the second person ever to experience such an event. My Neurologist thought that it was such a rarity he had planned on writting an article about the event for a national medical journal.

My guess is that when it can be proven that the VNS was the cause of a horrible adverse event the Cyberonics reps are trained to say "Out of all the VNS implants world wide an incident like this has only occured one time before." And if it can't be proven then its DENY,DENY,DENY.

:D

AND they are trained to say "User Error". How can "User Error" cause cardiac issues, falling down while stimulating, device migration because it was implanted wrong, etc., etc., etc.?

So, I am curious how many patients have been told they need to limit or even quit exercising because it is that causing cardiac issues and not VNS.

B)

When I had my sleep study done over a year ago...there were periods of bradycardia throughout the night. Since they were brief, the doc wasn't concerned. Of course, I didn't have a sleep study prior to VNS to compare it with. My guess is, that it would not have shown any bradycardia.

Simply walking really increases both shortness of breath & muscle spasms around my throat that feel like I won't be able to get a breath in during the 30 sec. stimulation. I can't imagine what would happen if I tried to start jogging again like I did some years ago.

I'm willing to tolerate these side effects because of the benefit I get from VNS. I can only imagine what people must feel like when they are having severe symptoms and the docs are saying it's not a problem with the device...it's a problem because you are WALKING...or DRINKING...or CRYING. So, they want us to buy the fact that if we would just stop walking, drinking, crying, etc. - there would be no problem.

I wish one moral, honest, whistle blower would come forth from CYBX. Oreo