how do i know a vns really works? (Vns Message Board)

Title: how do i know a vns really works?
Description: stepson has vns for almost 7 years......

greg - April 11, 2009 02:58 PM (GMT)

my wife and i maybe saw a little change in activity at first but now i know its not helping him at all!! :{

Dispatch - April 11, 2009 07:18 PM (GMT)

:D HI Greg and :Welcome: to the board!

It is kinda difficult to respond to your post since you didn't say much, but here's a go at it...

In some patients, VNS works short term per the D-01 pilot study. In others, it takes considerable time to work, and then there are people who respond quickly. All-n-all, everyone responds differently to VNS. If you see that it is no longer beneficial, please contact the doc ASAP to address the issues.

I hope you register to become a member so you can take full advantage of everything the board and all of us have to offer!

Hope to hear from you again soon and take great care!
B)

Birdbomb - April 12, 2009 09:40 AM (GMT)

:Welcome: Welcome Greg.

Glad you found your way from Coping-With-Epilepsy. If you would be able to give us a few more details, we may be able to give some suggestions.

When was he implanted? Then how soon was the VNS activated? What are his current settings? When did you notice a change? Is his doctor just insisting on upping the settings, more medications? Any thing else you can add.

This child's settings are very high. According to Gregs post at CWE he was started at 2.0!

labrat - April 12, 2009 05:23 PM (GMT)

Knowing his settings would help alot.

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