Howdy!

Since we've started a new board I thought that I'd let people know about my site!

The VNS From A Patient's Point Of View

Information and specifications about the Vagus Nerve Stimulator in plain English.

Information from people who have already had the implant.

A good information site for you to give to folks who want to learn about your VNS!



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If you want me to add your story to my site, please send me an e-mail with your story in it. I cut and paste your story into my html text.

This means that I do not do any editing for spelling and/or grammer.
IT"S YOUR STORY, EXACTLY THE WAY YOU SEND IT TO ME
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Hi Dave,

I’m happy you’ve found you’re way to this board and thanks for posting you’re website. Your site was one of the original resource materials I researched in making our decision for Joyce to enter the depression study program.

I recall you mentioning on the former Cyberonics board that after a considerable length of time you decided to reactivate the prosthesis. I would appreciate if you would take the time to comment here as to your experiences since the reactivation?

As always, thanks for your perspective on things as I’ve much appreciated not only your website but your various comments and thoughts.

Herb

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Herb

I have had to shut off the VNS and now the only time we use it is when I go for a lengthy time. So far this month I have had 3 seizures but the annoying thing is since I have stomach spasms it is hard at times to know. The only real way for me to know anymore is nausea starts.

How are you?

Lindsay Bowmer

Yesterday we had to use to magnet on me and I was nauseated until I went to bed. My stomach medicine isn't helping either. The spasms are pretty bad most of the time. I have to use the heating pad.

Lindsay

I am so sorry Lindsay, that things are not going well still. Do they know why your stomach is doing what it is doing? Email me if you want to.
Hugs,
Elisa

Lately is has been an up and down few days. Yesterday the magnet was used. Today has been hard with nausea, stomach spasms, and feeling useless. I called my church and talk to my pastor that has been helping me. Along with nausea, stomach spasms and headaches off and on. I feel lost. I just was criing and finally layed on the floor kicking just to get out madness of feeling like I can't help myself.
Yesterday and today I would call my discouraging days

Does the stomach spasms cycle with the "on" times?

Ellgee

the stomach spasms started in July and my vns was off so the to answer you no.
it will be worse if since now it is off and I had to use the magnet it would be worse, but for now we really have know idea why it just started and medicine isn't helping. it has made me nauseated since Friday night and it makes me feel sleepy when I am not.

I would have to say that the VNS has been a help. I am glad I have it deactive but still can use it. I had a seizure and it was used last night.

Lindsay,

I know what you mean.

I'd love be able to say the VNS was being a great helo now.

BUt the way my seizures have decreased I can't say that.

I know the decreased meds has a lot ot do with it since I'm off Klonopin.

I have increased Topamax 100 MG days ibefore my neuro wanted me to.

I'm still having 1-3 seizures a day.

I'd hate to think how many I'd be having if had VNS turned off or taking out.
Belinda