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Title: Atkins For Seizures


Birdbomb - June 7, 2005 06:09 PM (GMT)
Atkins For Seizures

Welcome to Atkins For Seizures

The Johns Hopkins Pediatric Neurology Center has long supported seizure management through Diet. The Ketogenic diet has saved the lives of many and improved the lifestyle of countless more. This intensive diet is very high in fat, and low in Carbohydrates (low-carb). In this, it resembles Dr. Atkins low carb diet designed for both weight loss and healthy living.

After four years and six different anti-seizure medications that didn’t help our daughter, we discovered Dr. Eric Kossoff and the Atkins Diet for Seizures. Our daughter became patient number thirteen in a study that ended in April, 2005. She is now medication free. She has approximately 15 seizures a day – down from 100 per day while on medication!

While Atkins for Seizures will not work for everybody, I believe this information needs to be made available to the medical community as soon as possible. There is also a need for centralized sharing of recipes, references, financial assistance, low-carb/keto-friendly suppliers, etc. Welcome to that place. It is our goal to provide support to families looking for more information.

One thing you will not find here is medical advice. We are families that have benefited from this approach – not pediatric neurologists. We will share our experiences and resources, but each child is different. Please seek qualified medical guidance. Dr. Eric Kossoff is an excellent resource and may be able to assist you in finding the guidance.

Fay - August 21, 2006 07:55 PM (GMT)
I have personally talked to Dr. Eric Kossoff at Johns Hopkins Hospital in Baltimore, Maryland and Johns Hopkins Hospital is THE only hospital in the United States actually treating patients with the Atkins for Epilespy diet. They treat adults of all ages, some teenagers and childrens with all types of seizure disorders who cannot tolerate the ketogenic diet or who have behavior issues and cannot be admitted into the hospital to start the ketogenic diet or cannot follow the much stricter ketogenic diet.
If you click onto the link that Birdbomb posted above it has the info you need to contact them if you are interested in the Atkins for Epilespy diet. He also told me that out of several tests they have done so far, the Atkins for Epilespy diet shows that it can work as well as the ketogenic diet (1/3 became totally seizure free and medication free, 1/3 it controlled the seizures by at least 50% to 90% and the other 1/3 it didn't help at all). It might be worth a try if your seizures aren't controlled very well or the side effects of the meds aren't tolerated very well.
There is a yahoo Atkins for Epilepsy email list too. To subscribe go to: www.atkins4seizures-subscribe@yahoogroups.com




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