Birdbomb
I can share this with you as you know I have had my stimulator shut off and the only seizure I have had was last night, before that I had not had a single one in 2 weeks and that raised my confidence a little. The other piece of good news is I saw the doctor on the 8th and she finally figured out that I had stomach spasms.
After hearing that it gave me some ease but not as much as I would of liked because I am having to carry medicine around in case I have one because they can come on quick. Other than having that one seizure last night and hearing that I am dealing with stomach spasms its good.
I have been using the heating pad alot because of pain. The bad thing is they can last all day.
Hope you are doing good? I think about you when I am e-mailing you. If you have any suggestions about what else might help my stomach spasms e-mail me at lbowmer@surewest.net/
Lindsay
Lately my run for no seizures hasn't been good, I had one yesterday and one today. My one hope is to get the seizure control back. Today I can remember some of it, the thing that was helpful is my dad came rushing to help. Overall my day was okay. The spasms in the stomach are very painful and having me tear-up.
Lindsay
Lindsay,
You are in my heart and in my prayers (yes it might seems a little out of "modern streem" but I have turned my life ove to God for my control over my destiny was gettin me no where). Has your doctor changed your diet at all???? Has he considered that the current med you are on are a trigger to this. You have alieviated the VNS to be the source. Has he refered you to a GI specialist that has more resources? Just all a little suggestions. Also as crazy at it seems Rootbeer and Gingerale can be an aid to the pains, but not Barq's you have to find A&W and Dad's rootbeer that are still made with sasafrass. What the hey, if nothing else they cure a thirst. AND NO DIET DRINKS. I am no doctor for sure but just suggesting things that have helped me.
Love ya girl!!!
Anita :wub: